Truths People with Hashimoto's Disease Wish Others Understood

Drew Martino shares what she wishes others understood about this condition.
Truths People with Hashimoto's Disease Wish Others Understood

Part of the endocrine system, the thyroid gland produces hormones that regulate your body's energy use, along with many other important functions. When your thyroid hormone production drops, your body processes slow down and change. This is hypothyroidism and can affect many different systems in your body. Symptoms include crippling fatigue, brain fog, weight gain, thinning hair, weak & achy muscles, and the list goes on.

Many thyroid patients feel misunderstood because their condition slows them down, and sometimes others view them as being lazy or isolated.

We partnered with Hashimoto's patient and Nutrition Health Coach Drew Martino to talk about what she wishes people understood about this condition.

It’s not all in our head.

Just because someone doesn’t “look” sick doesn’t mean they don’t feel sick.

As a society, we’re subconsciously taught that if you can’t see an illness, it doesn’t exist. But that couldn’t be farther from the truth in relation to thyroid disease. What’s going on internally can throw you off course when you least expect it. It can often feel like no one understands you or the emotional highs and lows your experiencing.

Your friends comments might even seem harsh…”Go get some fresh air,” or “You don’t look sick,” or “Don’t be so boring!” These comments make it seem as if they don’t care and it can be hard to explain to them exactly how you feel. Like that time you had to leave a party early at 9pm and everyone gave you a hard time. It’s not your job to make them understand but it is your job to stand your ground with how their words affect you.

That loneliness you feel when you don’t have something to physically “show” for your disease is what will keep you living in fear of letting others in. When you're told repeatedly that you look fine, you might start to believe that your illness is your fault. And when you're constantly bombarded with news and magazines telling you that it’s easy to get and feel healthy, the reality is that living with a chronic illness makes it much more difficult to achieve that sparkly goal.

There are no guarantees.

You never know what you’re going to get with thyroid disease. One day you feel amazing and on top of the world and the next you can’t seem to get out of bed. The inability to predict how you will feel at any given time makes it hard to create plans with loved ones.

Thyroid disease can also affect your mood and emotional state causing irritability and anxiety. One minute you're happy and the next you feel frantic and stressed. I can’t count how many times I’ve had to cancel plans last minute or leave a gathering early because of my thyroid disease or IBS. Having to socially withdraw from activities makes it hard to nurture relationships. And it’s hard for others to understand your reason why.

 

Thyroid disease is not a one-size-fits-all disease.

Thyroid disease affects everyone differently. Hypothyroidism and hyperthyroidism both have their own set of challenges. Hyperthyroidism causes symptoms like anxiousness, mood swings, unexplained weight loss, sleep problems and brittle nails and hair. Hypothyroidism comes with symptoms like fatigue, weight gain, sensitivity to cold, and hair loss.

Not only do these diseases present very different symptoms, but they also affect each person differently. And the most common difference relates to hormones. Hyperthyroidism is an increase in hormone production and hypothyroidism is an underproduction or decrease in hormone production. Just like there isn’t a one-size-fits-all approach to health and wellness. Thyroid disease changes in response to time, environment and from person to person.

It’s not that we “aren’t trying hard enough” or that we “just don’t want to.”

Living with hypothyroidism means you’re constantly justifying the way you feel, whether with yourself or with someone else. And it can feel like a battle between what you want to do and what you need to do. You know exactly what I’m talking about if you’ve ever been invited to exciting evening plans but your body says, “No way, I am SPENT for the day.”  No matter what’s going on externally in our world, it’s important to listen to our bodies signals and honor what it’s telling us. Even if that means cancelling plans.

 

Fatigue is our own worst enemy.

Fatigue from thyroid disease is not your typical feeling of tiredness. It can often feel debilitating and relentless. It can stop us in our tracks and makes it almost impossible to get up in the morning or stay awake past 9pm. That’s why it’s key for us to get more rest and create time to relax throughout our day. Fatigue doesn’t just settle in slowly like it does for most people. Instead it arrives like your in-laws: unexpected, unannounced, and with no guarantee when it’ll leave.

 

Thyroid disease is much more manageable when we have your support.

Living with thyroid disease makes every day a challenge but with your support and understanding we can thrive even on the toughest days. When we’re feeling vulnerable is when we need you most. Talking about anxious thoughts and feeling frustrated with weight gain or loss doesn’t feel so lonely when there’s someone there to listen.

 

Resources:

https://www.healthline.com/health/hypothyroidism/hypothyroidism-vs-hyperthyroidism#1

https://www.mayoclinic.org/diseases-conditions/hyperthyroidism/symptoms-causes/syc-20373659

https://nyaspubs.onlinelibrary.wiley.com/doi/abs/10.1196/annals.1366.015

Drew Martino

Nutrition Health Coach

Drew Martino is a Nutrition Health Coach, Certified Life Coach, Gut Health Expert, and founder of Happily Nourished LLC. She coaches women to look and feel amazing through online group programs, online guides, and personalized coaching. When not working, Drew is cuddling her 4 dogs, catching up on Netflix documentaries, or visiting local farmers markets.

Find her online at www.drewelizabeth.com or Instagram @drewmartino_.

Is Paloma Right For Me?

Hypothyroidism is a long-term commitment and we’re committed to you. Schedule a free, no-obligation phone consultation with one of our intake specialists to find out more.

Schedule a call

Sign up for exclusive offers and to stay get tips, recipes and stories about hypothyroidism

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.